ALS robs people of the ability to move, speak and eventually breathe
GREENVILLE, Pitt County – A fun, family event which supports a great cause holds in Greenville
The Down East Walk to Defeat ALS is a two-mile walk which starts and end at East Carolina University’s Dowdy-Ficklen Stadium at 10 a.m. Registration to participate began at 9:30 a.m.
Amyotrophic lateral sclerosis commonly called ALS and often referred to as “Lou Gehrig’s Disease,” is a progressive neuro-degenerative disease that affects nerve cells in the brain and the spinal cord. The disease robs people of the ability to walk, talk and eventually breathe. It traps them inside a body they no longer can control.
The Walk to Defeat ALS is a premiere fundraising event for The ALS Association. The ‘Down East Walk to Defeat ALS’ is one of six throughout North Carolina, which collectively raised $ 1.2 million last year. This year, the Down East Walk returns to the campus of ECU, which has a close connection with the fatal disease. Former ECU baseball coach Keith LeClair was diagnosed with ALS while coaching the Pirates, and resigned due to the disease after the 2002 season. He passed away in 2006.
Money raised at the Walk will benefit The ALS Association North Carolina Chapter, which focuses on helping people living with ALS in North Carolina and their families, as well as finding cures and treatments for the disease through research and advocacy. The North Carolina Chapter serves nearly 800 people living with ALS each year by supporting all of the state’s multidisciplinary ALS clinics, providing financial assistance to people living with ALS and operating support groups and a medical equipment loan program.
Since the ALS Ice Bucket Challenge there has been tremendous progress in the fight against ALS,” said Jerry Dawson, president and CEO of The ALS Association North Carolina Chapter.
“Scientists have discovered four new genes, there are more than 50 active clinical trials and we are funding 180 research projects in 11 countries around the world. We are working hard to keep the momentum going and will not rest until no one has to suffer with ALS any longer. Our Walks to Defeat ALS enable us to provide support for people living with ALS now while continuing to fund global research,” added Dawson.
The Walk to Defeat ALS, which will also feature music, food and kid-friendly activities.
For more information about The ALS Association, visit www.alsnc.org.